Craniosynostosis Procedure Information

Craniosynostosis Procedure Information

Why did this happen?

At this time, doctors are unsure why craniosynostosis happens. In some families, it does appear to be an inherited trait. It is most likely that some mutation occurred in the early development to one of the baby's genes; however, research cannot yet give us definitive answers on this. There is no indication that there is anything the mother did or did not do to cause this.


Will this happen to children I have in the future?

The chances that other children will have this problem are very slim... zero to four percent. These are also the chances of your child's children being born with craniosynostosis. The only exception is when the craniosynostosis is a part of Crouzon or Apert Syndromes, in which there is a 50% chance of the condition being passed on from parent to child.


What kinds of problems could my child have?

Depending on the severity of the craniosynostosis, your child may have some or all of these problems:

  • abnormal skull shape
  • abnormal forehead
  • asymmetrical eyes and or ears
  • intracranial pressure (pressure inside the skull) which can cause delays in development or permanent brain damage if not corrected

Will my child need surgery?

Babies born with craniosynostosis usually will need surgery, unless it is a very mild case. It is important that the proper X-rays and CT scans are made in order for your physician to make a correct diagnosis, as well as show you the fused sutures and how they will be reconstructed. Usually, only one surgery is required to separate the sutures, reshape the bones and place them in the proper position. Only 10% of children will need a second surgery. Surgery to correct craniosynostosis is usually performed between four and eight months of age.

CT demonstrating gaps in calvarial bone due to increased pressure from multi-suture synostosis. 

Craniofacial Surgical Team

Plastic surgery works in concert with neurosurgery and ENT, In planning and performing the best procedure. In early detection, the fused sutures can sometimes be released using limited or smaller incisions called an endoscope. More advanced cases or cases late to be diagnosed are repaired with a more open procedure where the bone is expanded and plated with plates that are absorbable. In certain cases we elect to release the suture and place bone expanding devices that penetrate thru the skin until the expansion is complete.

Am I alone?

No! There are many families and organizations who will be glad to talk with you and help you with information and support. Don't forget books, videos and websites. The listing below will get you started.